To practice any art, no matter how well or badly, is a way to make your soul grow. So just do it.

― Kurt Vonnegut

Saturday, September 27, 2014

Update from Debra After Week 1 of Treatment

We made it through week 1 of Wade's 6 week chemo / radiation treatment in Houston.  There were hard parts and good parts:

Hard Parts:

- We missed him like crazy and its difficult to not to be with him while he goes through treatment
- Wade's illness became much more real to the boys because he was gone getting "cured"
- The drugs and radiation made Wade feel bad

Good Parts:

- We felt like we started "The Cure" this week
- Wade found a garage apartment in West University that is only 10 minutes from the hospital and has a kitchen!  He walks and exercises for several hours each day and the neighborhood is beautiful and a cold front came through.
- He started getting meals from The Hippo Kitchen that caters to cancer patients going through treatment (thank you so much for your help supporting his meals in Houston…you guys have been amazing!!)
- He got to see Hilary Saltzman in the hospital yesterday who had a successful surgery to remove her liver cancer tumors (Yeah Hilary!!)
- He came home last night and was able to see Will's football game and is going to Ben's soccer game this morning
- After his first radiation treatment on Tuesday, Wade went to St. Paul's Methodist Church in Houston where we got married almost 20 years ago.  He sent me this picture while I was driving back to Austin.  Can you believe how beautiful this place is?  Perfect place for Wade to go after treatment.



So, when I look at the list above, I see more good than hard.  

We're taking this one day at a time and loving each other more and more every day.  

Wade posted on his blog about his experience this week…its a good read.  :)

Tuesday, September 23, 2014

Treatment Day One – St. Paul’s Cathedral

I completed first radiation treatment today with my team, Mustafa, Diego, and Neil. Mustafa retrieved me from Waiting Room F. He was tall and tan-colored. He took me to the control room where he, Diego, and Neil would watch me on CCTV as the free radicals fly around the lead-walled room where I will lie in cotton pants and Pumas. “This is where we will watch you Mr. Gillham. There is a two-way intercom. You need us, you call us.” He was deft and confident.

I entered the room beyond. Diego was there. He smiled and introduced himself. Diego was slightly built with tightly cropped black hair. He’s currently in training and, like a restaurant waiter shadowing a seasoned veteran, he delivers his verbal details to the team tentatively, calling out laser-guided coordinates with false confidence: 194.4 … 194.2 … 193.9 … 194. Awesome. It’s training day with the nuclear death-blaster machine.

I had already seen Neil pass through Waiting Room F several times carrying patient molds back to the radiation room. He looked like a bohunk beefhead. His hair was slicked back but perfectly parted on the side. It would remind you of GI Joe’s blonde-haired military-man style, but long in back and made darker by the styling oil. Neil's torso was meatier and much taller than GI Joe’s muscular 6 foot frame. Neil was probably 6 feet 6 inches. His demeanor was and will likely remain Soldier 101. He is the mid-level man. Today, he had Diego on a short leash.

I will continue to see these characters 28 27 more times by the end of this journey.

In the radiation room there was country music playing. The radiation machine sat hulking in the middle of the room, surrounded by walls of TV screens and heavy cables. It looked like it should have been on the Alien vessel, Sulaco. I guess it's 10 feet wide x 15 feet long x 8 feet tall. It’s painted gun-metal gray but has pink, orange and lime-colored no-slip shower flowers on the monstrous vertical, round opening. 

My mold waited on the metal table, which clearly was designed to slide me through the flowers and into the machine’s guts. I ducked under a massive metal arm and stretched out flat. A silver man-hole sized circle loomed above my face and neck housing a 10 x 10 inch window through which radiation would stream. 

The whole thing is called the machine's “gantry arm”. It extends above the opening with the flowers and is the size of a heritage oak on its side. Even two Neil-sized men could not touch finger tips around its girth.

From my vantage point on my back, I could see the under belly of the gantry. Inside its window and behind the glass thin dark gray fingers retracted and extended, science fiction come to life, forming a jagged, geometric hole. The fingers are made of lead and light fell through them onto my chest making a matching pattern. “Is that the shape of my tumor?” I asked no one in particular. “It’s the shape of the target field,” said Neil, over and out. “Roger that,” said I. Patient over and out.

I laid passively on the table as Diego and Neil pushed and nudged me alternatively. They squeezed my side skin. They pushed my legs to make my bottom more flat. They raised the table. They moved me more. They lowered the table. They drew red shapes on me. 

Project Dino Nugget.

Diego, whom I was liking quite a bit by now, said, “Okay Mr. Gillham. We’re ready to start. The gantry arm is going to move around you. There is another arm under you, and you will see it as the upper gantry arm goes beneath the table. We’re going to be taking X-rays throughout the procedure to be sure you are aligned with your simulations. This will take about 3 or 4 minutes. It’s important not to move.”

Time stood still. The gantry arm did indeed move and the machine made sounds I had not yet heard. The TV monitors on the walls flickered and changed images in my periphery. The machine’s lead fingers moved constantly forming different apertures as the arms encircled me.

I felt cold. And that was it. The country song ended and the three gents re-entered from the safe room.

Neil was back on point. He nodded to Diego to wrap it up. 

…slight pause
Diego: “I guess that’s pretty much it, Mr. Gillham.”
Neil: “Is that ‘pretty much it’, or all of it, Diego?”
Diego: “………………” breathing, silence, the sound of anxiety.
Patient: “Don’t screw this up, Diego.”
We all belly laughed, even Neil. 
Indeed, that was all.

After the appointment I came to St. Paul’s Cathedral just down the street from MD Anderson. It was 2:53 pm and people were leaving for the day. Clearly I missed my calling.

It was quiet in St Paul’s where I was married to Debra almost 20 years ago. I remember the men’s room. And of course I remember the sanctuary. It loses its impact when there is so much life happening around you – just as there was so many years ago. I recall standing to right of the pulpit when the videographer asked me if I had anything to say to Debra, training the lens on my face, “I love you and I am happy to be marrying you today.”

I texted her a picture of the sanctuary later in the afternoon as she was returning to Austin. 

Now you see why I love her.

Life goes on. I have now had my second dose of chemo therapy pills. I had my first two pills this morning and another three tonight. I am fighting the side-effects now even though I don’t feel anything yet. I feel great.


Thank you all for your prayers and thoughts. Thank you for taking care of my family while I am out of pocket.

Wade out.

Friday, September 19, 2014

Too Loved to Leave

As I said a while back, we are building a house. It will be a sacred place when we’re done. The number of times this place has ministered to me is already enough for sainthood. We don’t normally name homes, but for this one, we are aiming high. Mocking birds grace its trees and roof peaks. The mocker is – in my mind – unspeakably beautiful: Saint Mocking Bird. Maybe this house, when it’s a home, will be a mocking bird for us – unspeakably beautiful.

Here’s the thing I love about the house right now while it’s under construction. During the day there are ten, fifteen people here buzzing around applying their expertise. Later in the evening after they have all left, Debra and I come here and savor the forward progress. Beau comes too. He savors the cedar elm leaves of two big ones we had to cut down earlier this year. (Their offspring now shoot up from their stumps and Beau daintily eats their leaves….we don’t know why.) But on some of the best nights, I savor progress and then I sit down on the back porch and absorb life for a few minutes.

Man. Those are nice nights. Right now is one of them: the sky is still overhung with clouds from last night’s impressive storm, there is distant thunder and lightning coming this way, the rain is just now crackling as it pops on the live oak leaves, Beau, who is actually already Saint Beau, is beside me stone-cold chillin’ on the floor--tummy full of cedar elm leaves, I am wearing a new hat I like, Ryan Adams’ newest album is good, it’s playing, he’s coming to do an ACL Taping, and I got tickets. This is a nice night.

Food coma.

Deb and I have talked about this house for hours and hours. We have discussed its appointments and layout. We have studied, recorded, and tracked minutiae. We have met with architects (the wonderful Clayton and Little). And we have gotten to know our Super Supervisor “Nick” well-enough to both take and give good advice at the right times.

When this home is done and everything from the fireballs to the framer-built AV rack says “Debra and Wade Gillham”, we’re gonna have a freakin’ party. We have been planning a house for hosting people we love for most of our marriage. (That’s almost 20 years!) We’re gonna feed our bellies. We’re gonna converse and drink a bit. We’re gonna swim some in the pool (Yeehaw! We got a pool!). And we’re gonna converse-a-drink a bit more. And then we’re gonna plant our bums in front of a fire and conversadrink a wee bit more on top of that. We may even dance on a table. Whew. That’ll be a good night…

… And then morning will come with clean-up duties and bleary-eyed coffee requirements. I like the morning afters. Anyway….back to the story.

When we moved from our old house we left a tree that was everything a tree should be. It was big. It had a cool cast-iron cross inexplicably nailed to its side and partially grown over with bark. It had long, flexible arms with thirty-foot dad-hung rope swings beckoning over green grass and worn brown spots. It had a canopy that formed a huge cake of leaves. It was our tree. We named her Octopus Oak. Leaving her behind after ten years summoned many a happy memory. We had tears that day and since.


But in our new house, where now the wind is just barely making noise as it rustles through the branches and the rain is still crackling away, our new tree is holding court. Those cedar elms we cut down? We cut those down so our new tree could grow. Today she grows only to the north and west with her tresses. She gazes into a south easterly wind and her green locks are blown back to the north and west. I need to name her. What fits? Shiloh? Treeleign? Jane? …still wondering what will stick. There is a front runner. And we are sure we will come up with something perfect. But we know that this tree is going to be with us a long, long time. She is too loved to leave.

Wednesday, September 17, 2014

If you love something

We’ve all heard the platitudes about doves and loves: Set them free and if they don’t come back, they were never yours to begin with.


Napoleon Dynamite’s Dove Drawing. Notice the moon. 
Don’t be fooled. This dove looks beautiful but it is looking for crickets to eat.
When I stopped to think about this today while going through some growing pains, I think maybe we as parents do the opposite. We grow-up with our kids. We train them in key things that are important to us and that we believe should be important to them. We invest time and money in them. We love them. And then when we set them free, I think we fully expect that they will not return to us. At least not in the same way we have known them.

Some parents joke about getting kids off the payroll. I would pay anything to keep them close. But that’s not my goal. Nope. Not for me. The goal is to train them in the way they should go; according to their bent; according to their passion and then set them free to continue growing and maturing away from us.

As parents many of us recently had the opportunity to release our kids into the world to return to school. School is an uncertain place in so many ways. I am so very grateful my family made the decision long ago to put our kids in small schools with leadership that has similar beliefs to our own. There are lots of benefits to this, but maybe the most important one is the one we are “unfortunate” to have at this moment – the benefit of a caring staff that looks out for each kid – and especially kids with invisible wounds.

Deb and I have focused our parenting on making capable, confident little humans. We push them to think. We praise them when they do. We ask them to be responsible and respectful and sensitive. But sometimes the best parent for teaching lessons is experience and life. Each of our kids is carrying an invisible wound right now. And each of them deals with it, but in ways that are uniquely theirs.

Ben is maybe the most sensitive to my physical problems, which fits perfectly with his physicality. He’s learning when to exert his Benergy and when to throttle it back. We have adopted a new “Ben-ism” around here as a result of his tenderness with me. He was moving in fast to give me a beeg hug as we both laid on my bed but he stopped short: “Be careful. ‘Cause ‘member, his tube.” We use that phrase now to refer to my diet and other evils. For example, when cake is presented to me as a sugary-good temptation, I can ward it off by saying, “No thanks. ‘Cause member, my tube.”

Will is a mystery. He feels the nagging pull of the situation. But the effects are seldom seen. He has called several times from school to see how I am doing. I used to dread getting a call from “Trinity Episcopal School” because it meant one of three things: trouble, sickness, or low meal balance. Now it might mean I can hear Will’s voice on the other end of the line. So I answer with anticipation of his “Hey Dad. How’re you feeling?” He is learning how to care for others, how to let them know, and how important both things are.

Cate is carrying this a lot like I am: deep inside a locked box. When it shows, it is devastating for a few minutes until we get it under control again. It doesn’t sound healthy but we both come by it naturally. Of course, because she is still going through early life and maturing, and because she is our little girl, her breakdowns are more impactful to Debra and me.

We released Cate to her school this year. But life happens and we had a few tough patches. In each of these scenarios, Debra and I got to see the benefit of a caring staff at a small school. The school staff took Cate under their collective wing and protected her. They let her experience the dust and chaos of the fall, but the recovery, or what really matters, was a display of sympathy and resolution. We are very grateful. In particular Cate’s advisor took up her cause and care and is a light in this fog.

These things resolve and we all move on, stronger and wiser. We get up. We brush off the earth’s marks from our knees and palms. We wash our faces of tears’ stains. And Cate goes back into the fog again but we all know she is cared for and watched.  It helps you know. These extensions of ourselves help us have faith in people. They are there when you need them. We have proof, and we are very grateful for it.


If you want to really release something, release a kid. Watch them fly high out of sight. Feel the anxiety of their falls and your inability to catch them. But then one day, they will fly higher than you ever have before because you have taught them what you know and they launch from it. And when they come back to you it will be as your peer. And best of all, if you’re lucky and have done more important things right than wrong, their love will be freely given whether they are physically with you or not.

Quick Update from Debra...

The Gillhams are doing well.  Wade's treatments start in Houston next week.  He will do a combination of chemo and radiation Monday - Friday through October 30th.  He'll come home to Austin on the weekends.  The goal of the treatments is to shrink the tumor in his bile duct as much as possible so that the doctors at MD Anderson can determine the next best steps.  Our hopes and prayers are that the tumor goes away completely.  

Wade met with an oncological nutritionist that has encouraged him to begin eating according to the Ketogenic Diet to assist the drugs attacking the tumor. This is basically foods that are rich in natural fats and protein and low in carbohydrates (sugars and starches). It's also known as a low Glycemic diet.  We have been busy learning how to cook and eat in a whole new way and are busy reading "Idiot's Guide to the Ketogenic Diet".  Luckily, we have learned about a service in Houston called The Hippo Kitchen that caters meals for cancer patients undergoing treatments. The Hippo Kitchen will be delivering dinners to Wade Monday - Thursday while he is living there and undergoing treatment. This is a huge relief to me since I'll spend most of my time here in Austin with Cate, Will, and Ben.

We continue to be blown away by the gracious love and support we have received from our community.  You are all awesome and I see Wade feeling better and stronger every day from your all's generosity and thoughts.  Your meals, phone calls, text messages, prayers, smiles, and hugs are an important piece of his recovery puzzle. Thank you so much. 


My kids have Wadestrong bracelets at school every day. If you need one, just stop a little Gillham and ask for one. Ben especially loves passing them out--whether you want one or not. It's a small thing they can do to help.  To our friends and family that do not live here in Austin…your bracelets are on their way.  Remind me if you don't receive them.

United!

Our dear friend Jocelyn is rooting for Wade and MDJ - In it to win it.

Thursday, September 11, 2014

Having a Fit - Radiation Fitting and Schedule

I went to MD Anderson again today.

Monroe Dunaway Anderson. He and his descendants hold the name of one of the world’s most preeminent cancer curing centers. It is clear from wikipedia that Monroe was immensely wealthy having grown his Tennessee-based banking and cotton company to the largest in the world. His foundation received $19 million in 1939 after his death and funded a Texas-based cancer research center with a matching grant of $500,000 (about $8M today). Their only condition was that it be located in the Houston Medical Center and be named after him.

When I visited again today it was once more a shining beacon of operational efficiency and service excellence. I was in, fitted for radiation, and out in under an hour, and I received complementary valet parking. As a radiation patient my parking will remain complementary for the duration of my treatment because we rad-pats are in and out so quickly.  

Anyway, back to efficiency, I literally didn’t find a seat that was acceptable to my particular tastes (away from everyone, with a plug for my phone) before my name was called and two thirty-something ladies ushered me back to the CT room. 

The CT set-up took 25 minutes. They had me lay down on the table which was unpleasantly cold. They placed a hot blankie on me and then we set about the work of fitting my body to my personal mold which was also warm. So in the end the cool table was actually nice. Then they slid me back and forth in a very old CT machine. There was a black, clear, reflective surface inside the inside of the circle. My face stopped there for several minutes… As I sat there staring at a spinning space station behind the reflective surface I began to see my own darkly reflected face. It’s super wide. So is my mouth. My head is squooshed. My eyes are pulled tight. I watched myself. In the end super-villain Modok settled in my mind. He’s below. I actually made that exact face inside the CT machine.

Modok The Super Villain. He's very smart. You can tell because his head is giant.
They pulled me out and set about the tattooing process. Honestly, anyone with a tattoo is now somehow elevated in my mind. They are a level up with game I don’t have. My new tats are about as big as a sharpie point. But they really stung. There is a pic below. It’s just the black dot. I don’t have a large, permanent purple and pink cross on my chest. Dang.

Wade and Cate. My tattoo is not really visible from this shot, nor from outer space.

I am back down next week for final set-ups and blood work. Then I start all forms of treatment on Sept 23rd at 3:25 PM. 

Tuesday, September 9, 2014

Treatment Description - Target Start Date Still TBD

This update is just a quick overview of what’s in store for the treatment. We have been getting queries to this effect from friends and family, and the most effective way to communicate is here. So the below is what we know.

I met with the radiologists on Monday morning, Sep 8. True to my experience thus far, MD Anderson was a machine, barely giving me time to get bored with the Barbara Walters special blaring on the waiting room TV. They measured and weighed me, then set about the task of scaring the holy grail out of me.

What was amazing was that my case worker, a physician’s assistant named Daniel Malatek, spent a good 45 minutes with me. That’s longer than I have ever spent with a doctor who’s actually doing his/her doctor thing. The only exception was Cate’s birth when the doctor spent 12 hours with us. And once in grade school, but I don’t think that counts even though we had a stethoscope.

The radiology begins sometime next week in Houston and lasts for 5½ to 6 weeks. That puts me tentatively finishing treatment the week of my birthday on Oct 27. I am going to relish that. The doctors told me that the effects will last a few weeks beyond my last treatment though. So I may spend my birthday in radiation-hang-over land. TBD.

This Thursday I go back to MDA for a planning session. This includes a “fitting” in another CT machine where they hold me still and tattoo me for laser alignment, and then set a cradle that holds me in the same position for all the subsequent treatments. These measures ensure the machine always aims the radiation beam in the best spot to kill the tumor while minimizing the possibility of collateral damage to other organs in the vicinity. And they give you a tattoo. Awesome.

I also begin chemotherapy next week, if the radiologists get all their planning and positioning done. The doctors want to start both simultaneously to minimize the duration and side effects. The chemo is with a newish drug called Xeloda. I have heard from other doctors that it can be a very effective drug for the types of cancer it targets; fingers crossed.


Side effects from radiation and chemo comprise a long list of unpleasant things aside from the tattoo. The two most concerning physical things are nausea and the brown derby. The most concerning mental thing is that I could be very tired a lot of the time. This is hard due to the fact that when I am not sick, I don’t want to be tired. The doctors were sure to say that I might not experience any of these side effects, or may only experience them in slight amounts. But their responsibility dictates that they tell me all of them.  They also gave me medicine to combat the two physical ones. There’s nothing for fatigue except to sleep.

To anyone who reads this, thank you for your thoughts and prayers. We feel confident about the treatment, and I am actually excited to get going on ejecting this thing from my body. I feel super without the tube. It is a life-changer to have that gone. 

: )
Wade

Friday, September 5, 2014

MD Anderson Recap - No New Bad News

We went to the oracle again this week. The excellent news is that there is no new news. There is no additional cancer. There are no new bad surprises. We are planning to go back again on Monday to meet with the radiologist who will lay out the specifics of the treatment plan. That likely begins the week following. 

Wednesday, September 3, 2014

What God Said

Before you read this, you need to know several things. I am not religious in the sense of being at church whenever the doors are open. I was raised so, but moved away from that a long while back. I am a believer. I do spend a fair amount of time "talking to God." But I don’t spend a lot of time “talking with God.” But there have been times in my past when I have felt a clarity of thought that was not my own. It was in my head, but not of my making. I know. That’s not normal. Well, what can I say? Sometimes "normal" doesn't fit the experience.

I was struggling with what it looked like to see God last night. I wanted to thank Him. I was addled from the anesthesia effects from my recent tube-removal operation. It was successful, and when I came out of my snoozy state I wanted cheek-kisses from the nurses to celebrate. I know I got cheek-kisses, but from whom is a mystery to me.

But now I was lying – more like tossing – in my bed trying to put definition into what God would say if I wanted to let him know that I was grateful for my tube being gone. I had asked Him for that.

You know, here’s what came to me and what remained with me today. I thought about my precious little guy, Ben. If Ben had a tube in his body, and if by some unfathomable circumstance I had not been able to be with him when the doctors were trying to take it out, how would I act when I saw him without the tube? How would I be? There is no question. I would be ecstatic for him. My joy would be uncontainable. I would hold him and love him and tell him that I was so happy for him. I would tell him that if I could have had that tube in me instead of him, I would have done it in a split second. I would have held him and felt his warm little back and too-tight embrace. And then I would have watched him go unencumbered to life. That is how I imagined telling God thank you last night. I had a good experience.

I also took the opportunity to talk to him about my condition. I asked him if I could please not have to go back to the tube. He said yes. I asked him if I could be miraculously cured of my cancer. He said, “It’s not that I can’t cure you. I want you to go through this. There are things you haven’t learned yet, and to cure you now would deprive you of their benefits.” He said these things in a way that I seriously cannot articulate or reproduce here. They had such economy, clarity, and force. They were structured in an unusual syntax that I can’t conjure.

But to try -- he said them while in my mind the meaning behind His words formed.

When he said, “It’s not that I can’t cure you,” I immediately had images of indescribable beauty and power. The images from the Hubble come to mind now, although they are somehow less impactful than what I saw last night. The power He commands. Power to bestow Life. Power to imagine and then create Light and embed energy within it that we have yet to comprehend let alone tap. Power to create Dark and Despair. Power to cancel them. He has the power. He could do anything to me or for me.

An amateur found this Hubble jewel when digging through images that were unlabeled by NASA's scientists.
It was taken when Hubble was pointed at a dark space in the sky, formerly unknown to us to contain any heavenly bodies. The "stars" in this image are actually galaxies of stars.

But then He said, “I want you to go through this.” The importance of me being present with my family through this whole thing was crystal. It was the image and thought of being vulnerable to the effects of this treatment and going through it, but remaining strong, present, and vibrant for them. And through it, we would gain … benefits … that I don’t yet understand. But it’s important to hold on and to look for these things so that when they do present themselves I am aware enough to capitalize on them; I am there and can capture their value.

I don’t know the lessons to be learned and benefits to be gained from this time in my life. I am not sure what this holds for me or for my family. But among all the bizarre meanderings of my mind last night, I was struck by the clarity and presence of this conversation with God.


I don’t know what version of my future is in store. But I do know that my loved ones will benefit from it, and that gives me strength, determination, and patience to endure.

Tuesday, September 2, 2014

The Tube Is Gone! - ERRANT POST

All - for some reason blogspot sent this post out as new today. No idea why. The tube is not gone. This was the first tube, from September.

I'm really excited to report that Dr. Lee at MD Anderson successfully placed a stent in Wade's bile duct today and was able to remove the biliary tube that was driving Wade crazy.  We view this as a big victory.  Wade was so excited when he woke up from the procedure to find that the tube was gone.  I hugged Dr. Lee when he delivered the news in the waiting room.  Wade is super tired from a long day and undergoing general anesthesia and we still have a big week ahead with another scan and the meeting to hear the final treatment plan but we're excited to take in a victory in this journey and savor the moment.

Thank you for all of your prayers and well wishes.  Wade really wanted me to post an update tonight because he knows you all care and are worried.

Lots of love,

Deb

Monday, September 1, 2014

MD Anderson - Part the Third

We heard from MDA. We are heading down tomorrow now. It's a big day. They are trying to remove the tube… It's a super big pain in the booty.

They were not going to try unless they thought they could do it. So fingers are crossed, rosaries are rubbed and fingered, crosses are made on our chests and foreheads, prayers are whispered, chants are welcome and cheers are too. We are hoping for the procedure to be successful and that the tube is gone gone gone when I wake up tomorrow evening. Can't guarantee a post. If it's there, that is going to be tough. If it's gone, I will do my best to post something. Thanks in advance for thinking of us tomorrow at 2:00 PM.

We have Wednesday off and hope to drop in on the Houston Museum of Fine Arts if we have time and are feeling good.

Then Thursday we do a PET scan to see if the little bugger has spread. If it has, then well, I have some different chemotherapy to undergo. We will again be hoping and praying that it stays in the spot they have already seen it. We find out all this news this week. Then chemo and life happens.

Here's hoping for a week of double-rainbow good news.

Wade and Deb

Double Rainbow All the Way!!!!

Big - from Wade

Big. What’s big in this life? Why do we stop sometimes and think “Whoa. That’s big”? What makes us do that? I’m not so much thinking about why we say ‘whoa’ instead of ‘ah’ or something else. But more about what are the things, events, places, experiences, emotions, people that make us say ‘whoa’?

The 2-dimensional cube of mind-blow.
My daughter made me say whoa tonight. We were driving down 360 highway going south from Spicewood Springs and Great Hills. She was telling me about things that, in fact, had recently made her say whoa. The first was that if you have a certain kind of mind, you can look at a two-dimensional cube like the one here for the first time and see that it is two cubes at once: one with the higher square in front, and one with the lower square taking the foreground. 

Then, once your mind can wrap its arms around that concept, the cube can be static and dynamic at the same time. While I have known this for as long as I can remember, I have just seen my daughter internalize it. There are two things here that are big to me. One, that I am here to be with her. And two, she’s pondering school insights even when her class is long dismissed and her homework vanquished. God I love this girl.

Well then, she tells me about why she loves symmetry. (BTW, I love that word with its double m’s. How apropos.) We had just come down the long hill to the north end of the 360 bridge. “What a t’ing a beauty she is!” forming two opposing black bars with dividers and supports, silhouetted against the sun-drenched slope of the long hill up to West Lake Drive. And there at West Lake Drive, even the stop lights swing in unison and symmetry on either side of the divided lanes.

With this backdrop, which she pointed out, she let me know why she liked the movie Almost Famous but couldn’t connect with The Eternal Sunshine of the Spotless Mind. Among other things* she said, “The symmetry of the movie’s themes with its cinematography is better, more challenging, more thoughtful, and more appropriately matched in Almost Famous.” I thought to myself, “Dude. That is totally what I was gonna say.”

I realized I had had myself a big moment. Damn, my little girl was so interesting and I was spending time with her. I was ecstatic for her to meet someone awesome to be with, who would appreciate her insights like I do. But for now, I was happy taking her to a friend’s house where several kindred spirits were waiting. This was a big conversation and a big insight for me into who she is, and who she is becoming, and who she will be one day a long time from now.

Here’s another big thing. I was small today. I did something not big. I am watching with a great deal of anxiety as I try to determine if my precious people around me are doing well with the uncertainty of my cancer. Today, I invited Will and Ben to throw lacrosse balls or a little bit of football in the front yard. They obliged me. We started to the garage but were waylaid en route by the new juicer from our friends in Cali. We mixed up some pineapples with the skin on (!), some apples with the stem and seeds still inside (!), some whole (!) kiwis, some other equally cool stuff, watched the juicer hum, spin and spew juice into a pitcher, and then drank that sweet nectar down.

Meanwhile Will had grabbed my old baseball mitt. When I entered the garage, he said he wanted to play baseball instead. I can’t throw right now because of this damn tube. (Normally, mind you, I can knock a woodpecker off the side of a century-sized live oak, while running.) So I said, “I can’t play that man,” and closed the door.

It was an uncool thing to do. I should have stopped, thought for few seconds, and said something like, “No worries Will. I can’t throw though, so you’ll have to play something where I can watch.” Because duh. He’s dealing with a lot of stuff right now in that head of his, and not thinking about my feelings all the time. Being the adult, I should have thought of that.

But what’s big, what’s necessary, what’s a surprising thing, is that through a lot of work and thought, I can forgive myself for that and learn from it. Next time I won’t be so selfish. Next time, I will stop and realize that while I may have said I wanted to throw lacrosse balls or footballs, what I really wanted to do was spend time with my boys. I don’t care about the activity, do I. No. I don’t. Holding onto that is big for next time.

Thank God for our intellectual ability to think through these things. It’s what introspection is for after all. If you can’t be introspective, it’s hard for you to improve. You go through life and have very little idea of how your actions may affect someone --- including you --- unless it’s blindingly obvious.

These few minutes of introspection gave me a lesson that I have already used tonight. While my pizza grew cold from Austin’s Pizza, I watched each boy make five three-point attempts times two shots plus two sets of Muhhhhhhnky Dunks. That big moment with baseball gave me the ability to appreciate the next one fully.

Last big moment. Life can be stressful. It moves quickly. You gotta keep up. Ordering food. Driving to kids’ houses. Mixing juices. Buying stuff (like my new camera). Going places. Meeting friends. Making time for yourself. Walking the dog. Reading a bit of the NY Times. Drawing. Watching a really stupid video. Watching it again. And one more time. Eating. Cleaning up. Feeding the dog. Watching a movie. And on and on it goes. This constant to’ing and fro’ing generates a level of urgency in all of us. It’s maddening. It’s a beautiful master, but it takes its toll on us nonetheless. 

What became big to me today was talking to Deb about her night with her mom. It was a wonderful night, and the two of them shared in ways that only a mom and her daughter can share. Things were good. Things were open. Things were how and where they were supposed to be. The waters were calm and deep. And the two of them really had a bonding night. The point is that Deb was so present with her mom. She was there and there was nothing to badger her for the moment. She was in it, the moment that is. And what is big is that the moment delivered.

What’s big is putting the busyness machine on pause and realizing that when we take time for something important to us, it’s time that is ours to spend and we’re spending it on something we care about no matter how big or small. It’s time that is given to us, for us to use.

We can clear the fog of do do do do do do for good. Each of these moments is big because we are there in them. We’re in the car going to the store with each other. We’re on the phone with a close friend. We are eating across the table from our family member. We are walking a dog who ministers to us selflessly and wholly. We are cleaning up the kitchen with our spouse.  

If I can pause to consider why I am going where I am, and with whom, and be more present in those moments, then I can resume with the appreciation and self-benefit that can sometimes get lost in the fog. Whoa. That’s big.


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*If you’re interested in more on why Cate thought that about the movies, read on. She said of Eternal Sunshine of the Spotless Mind that anyone can do a grey room with grey clouds in the sky and a mopey actor to show that someone depressed. But the scene from Almost Famous with the lead singer of Stillwater, Russell Hammond, atop the highest point of a roof, about to dive into a pool too shallow, and screaming, “I am a golden god!” perfectly captures the rise and fall of the band, their relationship with William Miller the reporter, Russell’s self-absorption, and Penny’s doomed love affair with him. Boom. Mind blow.

Battle Booty - From Deb

Let me explain the title … I went to the mall shortly after Wade got home from Seton Hospital a few weeks ago on a mission to buy him some jeans that wouldn't fall off his new slim lined frame. (He's lost about 20 pounds you know.)  While at the mall with my friend Robyn (who had joined me for moral support) we dashed through the Nordstrom lingerie department to pick up some new undies for Cate and me. (I apologize. I know this is TMI but there is a reason I'm telling you this. Read on.)

While we were in the lingerie department at Nordstrom, I noticed a table filled with cute new Hanky Panky undie designs and one in particular caught my attention; Camo Hanky Pankys!  I had the thought that I should buy a pair for Cate and me and we would gear up our Battle Booty in support of Wade's battle against this cancer beast.  I told Robyn my idea and she loved it and proceeded to buy a pair for herself in support too.  I shared the idea with a few more friends which resulted in multiple purchases and a distribution plan. (Thanks Robyn, Jennifer and Tiffany.) I started receiving pictures like the ones below from friends that were running around town with their new Battle Booty underwear purchases….




I was on a run yesterday and was praying about how I can best support Wade in this battle we are in.  The thought came to me (with a lot of clarity) that I should blog about my Battle Booty plan in hopes that more of my girlfriends, cousins, nieces, mother and aunts would join Cate and me and gear up with some Battle Booty.  To the more mature women in my life (yes…I'm talking about you mom and my amazing aunts)…you are invited to buy a camo scarf if you can't get your arms around the idea of wearing Hanky Pankys…. I completely understand. Just so you'll know, I believe this idea was divinely inspired, so I think God likes the idea of us wearing camo undies!

The truth is that I've seen Wade both physically and mentally grow stronger and stronger as he receives texts, emails and phone calls with prayers and support from our amazing network of family and friends.  Every little bit is helping him heal.  And… his sense of humor hasn't gone anywhere.  So, to all of the women in our lives, please join Cate and me in wearing some Battle Booty.  

Back to the he clear thought that came to mind on my run yesterday. It was that anyone who participates in Battle Booty or Battle Wear of any type should take a selfie wearing your gear.  OK… please don't take a picture with just your Battle Booty on… Keep your clothes on (although I'm sure Wade would love to see some Battle Booty, we're trying to run a primarily G-rated ship over here).  Just send him a selfie telling him you have your Battle Booty on! Here's his email: wgillham@gmail.com, and here's his cell phone for texts: 512 415-0329.

Below is the link to Camo Battle Booty if you would like to purchase them online:

http://shop.nordstrom.com/s/hanky-panky-hunter-regular-rise-thong/3840992?origin=keywordsearch-personalizedsort&contextualcategoryid=2375500&fashionColor=&resultback=601&cm_sp=personalizedsort-_-searchresults-_-1_2_C

http://shop.nordstrom.com/s/hanky-panky-hunter-boyshorts/3840550?origin=keywordsearch-personalizedsort&contextualcategoryid=2375500&fashionColor=&resultback=720&cm_sp=personalizedsort-_-searchresults-_-1_3_A

Love, Deb

Wade / Dad - We've got on our Battle Booty supporting you all the way!

Cate and Deb with Battle Booty.